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| Spending lots of time with books and blocks, and enjoying some science experiments! |
Every time Phil goes out to the mail box, the vegetable garden, or the garage, Max volunteers as his shadow. The kid LOVES to be outside. Camdyn would be fairly content to be artsy and play dress-ups much of the day. She practically LIVES in her pink dance costume with the fluffiest tutu you'll ever see. EVER. And yes, that's a promise.
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| Almost always happy to play together. |
We've tried to break up some days by doing little activities here and there...a tiny garden of crystals ("just add water!") and a kit of slime (it was bright green) made for a bit of excitement and some giggles. We celebrated our indoor 4th of July with some delicious food, fun decorations, and a Dollar Tree bag's worth of glow sticks. It was a hit. (Thanks for spending it with us, Lex!!!). The kids were up until 10. And we still have a couple of surprise activities for them up our sleeves.
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| Making homemade fro-yo, a little painting project, and a bit of reading and building. |
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| Sneaking outside for a little muddy, chalky, watery fun! |
We attended Camdyn's second follow-up cardiology visit this past week...she passed with flying colors. Praise God!!! All of her "numbers" look fantastic. For now, we keep "doing what we're doing" and follow up with her cardiologist in another week and a half from now. No lab work for two weeks?!?! That was music to her ears. And who am I kidding? It was music to our ears, too...even Max, who isn't exactly a huge fan of spending 3 1/2 hours at the hospital for testing and appointments. But who can blame him?
We can't even begin to express how thankful and relieved we are that we're on "this side" of her Fontan. It's the one we've been dreading more than any other for almost six years. SIX YEARS. That provides a lot of time for growing anxious over something...which provides a lot of time for God to give a peace like nothing and no one else can. It's also a lot of time to learn to rest in His sovereignty and promises. How quickly life can change, at the drop of a hat. That's what it was like when we found out she had HLHS. That may be a story for another day that we'll share, but it's sure taught us a lot.
More than anything, we recognize how blessed we all are that everything has gone so relatively smoothly this far. And I feel like I keep repeating myself about that, but it's the honest truth. We attended Camp Taylor (for "heart kids" and their families) for the first time last summer, and we learned just how blessed we are (in addition to having a wonderful time). So many of these kids have multiple defects, or other health hurdles in conjunction with a heart defect that they couldn't be counted on one hand. That also means they're on multiple medications that they're taking around the clock. The only heart-related medication that Camdyn is taking is a baby Aspirin every day (she will eventually be off of her lasix). You're soooo lucky, we heard. No way....really?? Wow, we were told. I think that's when we realized the shallow waters we waded through, compared to the depth of water for so many others. With her doing so well, it can be easy to forget that she's a heart warrior. It's something we're definitely trying hard not to take for granted. It could change so easily, so quickly. But for some reason, God has blessed us with a smoother road than many others for the last six years. We hope and pray that this track record continues.
We have at least four more weeks of being home bound...six more at most. School begins soon. Maybe we'll be able to squeeze in a quick trip to the coast before then, maybe not. But we're thrilled to be enjoying the "relaxing" half of summer...and so thankful that we can.
Don't take the little things for granted, friends. They add up to one big blessing that you might overlook, otherwise. Count your blessings...each one, great and small.
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